New music festival will benefit ALS awareness

2 Sep

One thing I’ve learned about Webster in the years I’ve lived here is that when someone needs help, this community rallies around them, big time.

OK, make that TWO things: Webster loves its music.

Both of those truths will be on full display on Saturday, Sept. 11 at a brand new music festival called Webster Rocks for ALS Awareness. The event is being held in part to benefit Kacie Jones, a former Coach Sports Bar employee who was diagnosed with ALS two years ago.

The event website explains,

Kacie is a 30-year Rochester/Webster young man who has ALS (Amyotrophic Lateral Sclerosis). He is in a fight for his life; a day-to-day battle to do even the simplest of tasks that most of us take for granted. On Saturday, Sept 11, we will come together for Kacie and others struggling to live with and fight ALS. Let’s help Kacie and his family raise awareness for ALS, provide alternative treatments, and bring about a possible cure for this disease.

Funds raised will also benefit Healing ALS, an organization dedicated to supporting awareness, research and care for those suffering from ALS.

The festival will be held on Saturday Sept. 11 beginning at 2 p.m. at the Webster Firemen’s Field on Ridge Rd. Food trucks will be on hand from 3 to 8 p.m., and alcohol sales will be provided by the Coach Sports Bar.

An incredible music line-up starts at 3 p.m., featuring Anthony Blood and Brody Schenk, State Line, Brass Taxi, Dial Up, and M80s. (Check the website for more details about the schedule.)

Tickets are $20 in advance (available from the Coach Sports Bar, 19 W. Main in Webster) and Eventbrite (but they charge fees, so stop by the Coach to save money). They’re still looking for volunteers, too, so ask about that when you’re picking up your tickets.

To read more about Kacie and his brave battle with this disease, check out this great story posted on WHEC-TV in March.

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2 Responses to “New music festival will benefit ALS awareness”

  1. Marcia Stewart April 4, 2022 at 7:36 pm #

    With my amyotrophic lateral sclerosis (ALS), the first thing that happened almost 2 years ago now, was speaking as if I were drunk. I wasn’t. I initially did improve speech (articulating clearly but slow) but now I can no longer speak in an acceptable way. Then, a year later eating became problematic, I was biting my tongue and lips, and chewing became weak and less controlled. Soon after that some fingers started to fail me and things would drop out of my hands. Somewhere at that time bulbar ALS was diagnosed. The Rilutek (riluzole) did very little to help me. The medical team did even less. My decline was rapid and devastating.. We tried every shot available but nothing was working. There has been little if any progress in finding a reliable treatment, Our care provider introduced us to Kycuyu Health Clinic ALS/MND herbal treatment. The treatment is a miracle.i recovered significantly

  2. Thato amelia November 8, 2022 at 1:47 am #

    My first symptoms of ALS occurred in 2014, but was diagnosed in 2016. I had severe symptoms ranging from shortness of breath, balance problems, couldn’t walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then I decided to try alternative measures and began on ALS Formula treatment from Tree of Life Health clinic. It has made a tremendous difference for me (Visit w w w. treeoflifeherbalclinic .com ). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. ]

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